CF WEEK! 24th-30th June

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Well this is a quick or quick as can be blog on CF WEEK!
So if you haven't guessed by the title it is CF week so I suppose I best get some awareness in, by updating my blog on information and all that jazz.
How do you get Cystic Fibrosis?

Cystic Fibrosis is a genetically inherited condition. - The reason it's in bold is because you can not catch CF it is passed from the genes by both mother and father.

If a baby is born with CF then this means both parents are carriers, and the child was that statistically 1 in 4 to have CF. What I mean by this is that if both parents are carriers than the baby has a 1 in 4 chance of having Cystic Fibrosis.

What is Cystic Fibrosis?

Cystic Fibrosis causes the build up of thick sticky mucus in various bodily parts especially the lungs and the digestive system. It can also affect other organs around the body by clogging them with this thick sticky mucus.

Why do people with Cystic Fibrosis have thick, sticky mucus?

The reason why people with Cystic Fibrosis have thick sticky like mucus is because the salt and sodium chloride is not regulated properly thus causing the mucus to not be a watery substance but in actual fact a thick substance. This makes it hard to cough up/move evenly within the organs which then causes the build up of mucus.

How are people with Cystic Fibrosis diagnosed?

Diagnosing Cystic Fibrosis can be done at any age but regardless of when the person was diagnosed they would still have inherited the illness at birth, but they may not have shown signs/symptoms until later on in life. The normal diagnosis of CF is sweat test, heel prick test and symptoms can also be a sign too i.e. coughing a lot, poor weight gain, salty tasting skin (< Odd right?!) etc.

What does mutation mean?

There are many different mutations of Cystic Fibrosis this meaning that different parts of the Cystic Fibrosis Trans-membrane Regulator is affected. I am DF508  (be warned here is the sciencey bit)  The D stands for delta then the F is what's called the codon for phenylalanine which stands for F in the periodic table - hence the F then the 508 part is which position the CFTR is affected so mine is position 508 in the CFTR gene.

Are everyone with Cystic Fibrosis the same?

People with Cystic Fibrosis are completely different to one another. Even people with CF who have the same mutation are not affected in the exact same way.

Do people with Cystic Fibrosis have the same medication/treatments?

Anyone who has Cystic Fibrosis do not necessarily have the same medications/treatments they may have different medications/treatments which they do which are beneficial to help keep them stay as healthy as possible. This includes; physio, nebulised antibiotics and nebulised medication to thin the mucus, inhalers, digestive enzymes, antibiotics, vitamins and much more (note not all people have the same medication - This can vary)

I haven't even covered half of CF there, but there is a little knowledge/awareness for you. That's if you have not be bored and ignored it Ha!

It is estimated that 1 in 3 people who are assessed for transplant with Cystic Fibrosis die waiting on the list. Could you possibly change this and be not only someone's hero, but several people's hero?
If you fancy signing up to the organ donor register then CLICK HERE! or even for more information then still click the link because it may change your mind!

For more information then you can always comment below, tweet me @chanmillward_ or me anon if you wish which is

Please continue to read my page, and share as much as possible. I would appreciate it so much, so on my behalf thank you!

If you would like more information on Cystic Fibrosis then CLICK HERE

P.S I will do another post about how I'm doing and what not soon but this is just purely dedicated for CF Week! (That is of course if you're interested in my boring life?!) Hope you're all keeping well, or as well as can be!

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